Radin, Joanna. Digital Natives’: How Medical and Indigenous Histories Matter for Big Data
2017, Data Histories, 32 (1): 43-64
-
Expand entry
-
Added by: Tomasz Zyglewicz, Shannon Brick, Michael GreerAbstract:
This case considers the politics of reuse in the realm of “Big Data.” It focuses on the history of a particular collection of data, extracted and digitized from patient records made in the course of a longitudinal epidemiological study involving Indigenous members of the Gila River Indian Community Reservation in the American Southwest. The creation and circulation of the Pima Indian Diabetes Dataset (PIDD) demonstrates the value of medical and Indigenous histories to the study of Big Data. By adapting the concept of the “digital native” itself for reuse, I argue that the history of the PIDD reveals how data becomes alienated from persons even as it reproduces complex social realities of the circumstances of its origin. In doing so, this history highlights otherwise obscured matters of ethics and politics that are relevant to communities who identify as Indigenous as well as those who do not.Galgut, Elisa. Raising the Bar in the Justification of Animal Research2015, Journal of Animal Ethics 5 (1):5-19-
Expand entry
-
Added by: Simon Fokt, Contributed by: AnonymousAbstract:
Animal ethics committees (AECs) appeal to utilitarian principles in their justification of animal experiments. Although AECs do not grant rights to animals, they do accept that animals have moral standing and should not be unnecessarily harmed. Although many appeal to utilitarian arguments in the justification of animal experiments, I argue that AECs routinely fall short of the requirements needed for such justification in a variety of ways. I argue that taking the moral status of animals seriously—even if this falls short of granting rights to animals—should lead to a thorough revision or complete elimination of many of the current practices in animal experimentation.Comment: This paper can be used in a course on animal research ethics.
Can’t find it?Contribute the texts you think should be here and we’ll add them soon!
-
Comment (from this Blueprint): In this 2017 paper, historian Joanna Radin explores how reusing big data can contribute to the continued subjugation of Akimel O’odham, who live in the southewestern region of the US, otherwise known as the "Pima". This reading also illustrates how data can, over time, become used for what it was never intended or collected for. Radin emphasizes the dangers of forgetting that data represent human beings.