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Added by: Chris Blake-TurnerAbstract:
In this article, I argue that (1) transgender adolescents should have the legal right to access puberty-blocking treatment (PBT) without parental approval, and (2) the state has a role to play in publicizing information about gender dysphoria. Not only are transgender children harmed psychologically and physically via lack of access to PBT, but PBT is the established standard of care. Given that we generally think that parental authority should not go so far as to (1) severally and permanently harm a child and (2) prevent a child from access to standard physical care, then it follows that parental authority should not encompass denying gender-dysphoric children access to PBT. Moreover, transgender children without supportive parents cannot be helped without access to health care clinics and counseling to facilitate the transition. Hence there is an additional duty of the state to help facilitate sharing this information with vulnerable teens.Bortolotti, Lisa, John Harris. Disability, Enhancement and the Harm-Benefit Continuum2006, In John R. Spencer & Antje Du Bois-Pedain (eds.), Freedom and Responsibility in Reproductive Choice. Hart Publishers-
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Added by: Simon Fokt, Contributed by: Nils-Hennes StearAbstract:
Suppose that you are soon to be a parent and you learn that there are some simple measures that you can take to make sure that your child will be healthy. In particular, suppose that by following the doctor’s advice, you can prevent your child from having a disability, you can make your child immune from a number of dangerous diseases and you can even enhance its future intelligence. All that is required for this to happen is that you (or your partner) comply with lifestyle and dietary requirements. Do you and your partner have any moral reasons (or moral obligations) to follow the doctor’s advice? Would it make a difference if, instead of following some simple dietary requirements, you consented to genetic engineering to make sure that your child was free from disabilities, healthy and with above average intelligence? In this paper we develop a framework for dealing with these questions and we suggest some directions the answers might take.
Comment: This is a paper that gives an account of enhancement and disability in terms of one's relative position on a harmed and benefitted continuum, and defends enhancement on completely general moral grounds according to which the pro tanto duty to enhance is the same as the pro tanto duty not to disable. It pairs well with criticisms of the 'new eugenics', such as Robert Sparrow's 'A Not-So-New Eugenics' (2011) and more generally with consequentialist or specifically harm-based accounts of moral obligation.
Abudu, Kenneth U. , Imafidon, Elvis. Epistemic Injustice, Disability, and Queerness in African Cultures2020, In: Imafidon, E. (ed.) Handbook of African Philosophy of Difference. Cham: Springer, 393-409-
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Added by: Björn Freter
Abstract: Perception, representations, and knowledge claims about disability and queerness vary across societies and cultures. In African cultures negative knowledge claims and representations of disability and queerness create a perception of the disabled and queer that are not only detrimental to such persons in African societies but arguably undermine the work of understanding difference and tolerance in general. These negative claims raise some epistemological questions, such as: how do Africans come to know about disability and how are such knowledge claims validated within African communities? Against this backdrop, this chapter critically examines the epistemology of disability and queerness in African traditions. It shows that the epistemic authoritarianism found in African epistemology leads to an epistemic injustice that contributes immensely to the discrimination against disabled and queer beings as reflected in many cultural practices across the continent of Africa. The chapter argues that knowledge claims about disability and queerness in Africa emerge mainly from neglect, superstition, myth, and, above all, ignorance.Comment:
Imafidon, Elvis. Africa and the Unfolding of Difference: An Introduction2020, In: Imafidon, E. (ed.) Handbook of African Philosophy of Difference. Cham: Springer, 1-11-
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Added by: Björn Freter, Contributed by: Björn Freter
Abstract: This chapter provides introductory comments or preliminary remarks to the Handbook of African Philosophy of Difference. It begins by defending the claim that difference stands under as the foundation of the unfolding of African philosophy as an academic discipline and the unfolding of many lived experiences in African spaces both in Africa and in the Diaspora. Hence, African philosophy of difference is a critical reflection on the place of difference in the African experience. The chapters in this handbook thus explore various and specific aspects of such lived experiences and the roles difference or alterity play in their unfolding. The handbook is thus divided into five sections with each section exploring key aspects of the importance of difference in the understanding of the African experience. The first section provides conceptualizations of difference in African thought. The second section explores various aspects and provides critical comments on the question of racism, particularly the institutionalized racial discrimination by whites against blacks due to racial differences. The third section examines some key issues emerging from the role difference plays in the unfolding of African experiences such as epistemological issues, the language issue, the role of art in the institutionalization of difference, and moral issues. The fourth section explores the important roles that difference plays in questions of disability, gender, and the non-human other. The last section examines how difference plays key roles in the unfolding of lived experiences in specific African places such as the experience of xenophobia in South Africa, the Skolombos in Calabar, Nigeria, and the land distribution question in Zimbabwe. The chapter concludes that this handbook is an important contribution to alterity discourse in African philosophy not because it exhausts the issues involved, but because it provided a robust discussion that would provoke further reflections and discussions.Comment:
Kuhse, Hoyt, Singer, Peter. Should the Baby Live? The Problem of Handicapped Infants1985, Oxford University Press.-
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Added by: Clotilde Torregrossa, Contributed by: Simon Fokt
Publisher's Note: Few subjects have generated so many newspaper headlines and such heated controversy as the treatment, or non-treatment, of handicapped newborns. In 1982, the case of Baby Doe, a child born with Down's syndrome, stirred up a national debate in the United States, while in Britain a year earlier, Dr. Leonard Arthur stood trial for his decision to allow a baby with Down's syndrome to die. Government intervention and these recent legal battles accentuate the need for a reassessment of the complex issues involved. This volume--by two authorities on medical ethics--presents a philosophical analysis of the subject based on particular case studies. Addressing the doctrine of the absolute sanctity of life, Singer and Kuhse examine some actual cases where decisions have been reached; consider the criteria for making these decisions; investigate the differences between killing and letting die; compare Western attitudes and practices with those of other cultures; and conclude by proposing a decision-making framework that offers a rational alternative to the polemics and confusion generated by this highly controversial topic.Comment:
Davis, Alison. Right to life of handicapped1983, Journal of Medical Ethics 9 (3):181-181.-
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Added by: Clotilde Torregrossa, Contributed by: Simon Fokt
Abstract: This notion of non-personhood denies the right of handicapped people to be recognised as equal human beings in a caring society, and it makes a mockery of the goodwill which seemingly abounded in the International Year of Disabled People. Legislation of the type proposed could well also lead to the de facto decriminalisation of the act of killing a handicapped person of any age, just as it did in Hitler'sGermany.And if it does, woe betide any handicapped people who are too ill to defend their right to life by protesting that they are in fact happy. And woe betide us all, when we get too old to be considered 'useful' and all the friends who could have spoken in our defence have already been oh so lovingly 'allowed to die'.Comment:
Bortolotti, Lisa, John Harris. Disability, Enhancement, and the Harm-Benefit Continuum2006, In John R. Spencer & Antje Du Bois-Pedain (eds.), Freedom and Responsibility in Reproductive Choice. Hart Publishers.-
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Added by: Chris Howard
Abstract: Suppose that you are soon to be a parent and you learn that there are some simple measures that you can take to make sure that your child will be healthy. In particular, suppose that by following the doctor’s advice, you can prevent your child from having a disability, you can make your child immune from a number of dangerous diseases and you can even enhance its future intelligence. All that is required for this to happen is that you (or your partner) comply with lifestyle and dietary requirements. Do you and your partner have any moral reasons (or moral obligations) to follow the doctor’s advice? Would it make a difference if, instead of following some simple dietary requirements, you consented to genetic engineering to make sure that your child was free from disabilities, healthy and with above average intelligence? In this paper we develop a framework for dealing with these questions and we suggest some directions the answers might take.Comment: This paper is an especially good inclusion in any bioethics course that has units on both disability and enhancement, covering issues at the intersection of these topics - indeed, it could be used quite effectively as a "transition paper", bridging a unit on the former topic with a unit on the latter. The piece pairs particularly well with Michael Sandel's, "The Case Against Perfection", and should be suitably accessible to all students, requiring very little philosophical background.
Barnes, Elizabeth. Disability, Minority, and Difference2009, Journal of Applied Philosophy 26(4): 337-355.-
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Added by: Emily Paul
Abstract: In this paper I develop a characterization of disability according to which disability is in no way a sub?optimal feature. I argue, however, that this conception of disability is compatible with the idea that having a disability is, at least in a restricted sense, a harm. I then go on to argue that construing disability in this way avoids many of the common objections leveled at accounts which claim that disability is not a negative feature.Comment: Really useful in an applied ethics course or, for instance, in a metaphysics course when teaching about social ontology and social constructivism. This would be a great primary or secondary reading for the latter. If being used as a primary reading, students could simply be asked as seminar preparation to summarise Barnes' argument in their own words. I think it's really important to get a good handle on, and having this question as preparation will get students thinking about it in depth beforehand. As this is quite a substantial task, it would be fine for this to be the only set question. I really think everyone should read this paper.
Kittay, Eva Feder. When Caring Is Just and Justice is Caring: Justice and Mental Retardation2001, Public Culture 13(3): 557-580-
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Added by: Jamie Robertson
Summary: In this paper, Kittay advances a conception of justice that 'begins with an acknowledgement of dependency and seeks to organise society so that our well-being is not inversely related to our need for care or to care' (576). Her motivation for advancing this view is that ideals of citizenship in liberal society, including independence and productivity, perpetuate the victimisation, social exclusion, or stigmatisation of people with mental retardation and their carers. This is because liberal definitions of personhood do not provide resources for responding in a morally adequate way to the mutual dependence of people with mental retardation and their carers/advocates. People with mental retardation are inescapably dependent because of their central need for attentive care. And, carers' work is so deeply other-directed that they also do not fit the liberal model of the rationally self-interested actor. Thus, both carers and their charges are vulnerable and need to be advocated for so that they can be seen as having important entitlements to public resources and claims to justice. To this end, Kittay proposes a conception of personhood that is based on relationships. Although those with mental retardation are inherently dependent, they still count as persons because they are able to participate in relationships. This makes them entitled to the satisfactions that make life worth living. To achieve the twin goal of achieving justice for familial or paid carers, Kittay advances a new principle of justice, doulia, which calls for larger society to support those who care for the inexorably dependent. Kittay takes her relational conception of personhood and her principle of doulia to ensure that appropriate forms of social organization exist to support all those who become dependent. She claims her view is needed because principles of charity and beneficence are not adequate since they are consistent with the continued stigmatization of mental retardation and care work, and ground only low-priority social obligations.Comment: This paper, with it's helpful discussions of the elements of the liberal tradition with which Kittay specifically takes issue and the inadequacies of the Americans with Disabilities Act, would be an appropriate reading for courses about the philosophy of disability or about liberal political theory.
Garland-Thomson, Rosemarie. Picturing People with Disabilities: classical portraiture as reconstructive narrative2010, in: Richard Sandell, Jocelyn Dodd, & Rosemarie Garland-Thomson, Re-presenting Disability: Activism and Agency in the Museum, London: Routledge, pp. 179-193.-
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Added by: Hans Maes
Summary: Provides a close reading of formal portraits of people with disabilities. Focuses on the fundamental elements of traditional portraiture: frame, pose, costume, likeness. Central argument: a conservative representational genre can act in the service of a progressive politics. Through framing, pose, costume, and likeness portraits accord dignity, authority, and symbolic capital to disabled subjects.Comment: Useful in discussing portraiture and depiction, as well as empowerment and art's role in power relations in general.
Artworks to use with this text:
Doug Auld, Shayla (2005) Portrait of a black woman with significant burn scars
Compared and contrasted with Gilbert Stuart's portrait of George Washington (1810).
Sasha Newley, Christopher Reeve (2004)
Juxtaposed with earlier iconic portraits of the 'man of steel'.
Marc Quinn, Alison Lapper Pregnant (2006)
Powerfully asserting that a woman with significant disabilities who is evidently sexual, about to become a mother, is worthy of being seen on the Fourth Plinth in Trafalgar Square. Useful in discussing portraiture and depiction, as well as empowerment and art's role in power relations in general.
Artworks to use with this text:
Doug Auld, Shayla (2005) Portrait of a black woman with significant burn scars
Compared and contrasted with Gilbert Stuart's portrait of George Washington (1810).
Sasha Newley, Christopher Reeve (2004)
Juxtaposed with earlier iconic portraits of the 'man of steel'.
Marc Quinn, Alison Lapper Pregnant (2006)
Powerfully asserting that a woman with significant disabilities who is evidently sexual, about to become a mother, is worthy of being seen on the Fourth Plinth in Trafalgar Square.
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Priest, Maura. Transgender Children and the Right to Transition: Medical Ethics When Parents Mean Well but Cause Harm
2019, The American Journal of Bioethics. 19 (2): 45-59.
Comment (from this Blueprint): Priest argues that the state should provide puberty-blocking treatment (PBT) for trans youth, even if their parents are not supportive. Priest’s argument is important partly because it avoids the issue of whether adolescents and children can give properly informed consent. This is a point that some of Priest’s critics seem to have missed (see, for example, Laidlaw et al. 2019. “The Right to Best Care for Children Does Not Include the Right to Medical Transition”, and Harris et al. 2019. “Decision Making and the Long-Term Impact of Puberty Blockade in Transgender Children”). Priest’s conclusion is founded instead on a principle of harm avoidance.