Topic: Social Philosophy -> Disability
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Lim, Chong-Ming. Accommodating Autistics and Treating Autism: Can We Have Both?
2015, Bioethics 29(8), 1-9

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Added by: Björn Freter
Abstract: One of the central claims of the neurodiversity movement is that society should accommodate the needs of autistics, rather than try to treat autism. People have variously tried to reject this accommodation thesis as applicable to all autistics. One instance is Pier Jaarsma and Stellan Welin, who argue that the thesis should apply to some but not all autistics. They do so via separating autistics into high‐ and low‐functioning, on the basis of IQ and social effectiveness or functionings. I reject their grounds for separating autistics. IQ is an irrelevant basis for separating autistics. Charitably rendering it as referring to more general capacities still leaves us mistaken about the roles they play in supporting the accommodation thesis. The appeal to social effectiveness or functionings relies on standards that are inapplicable to autistics, and which risks being deaf to the point of their claims. I then consider if their remaining argument concerning autistic culture may succeed independently of the line they draw. I argue that construing autistics' claims as beginning from culture mistakes their status, and may even detract from their aims. Via my discussion of Jaarsma and Welin, I hope to point to why the more general strategy of separating autistics, in response to the accommodation thesis, does not fully succeed. Finally, I sketch some directions for future discussions, arguing that we should instead shift our attention to consider another set of questions concerning the costs and extent of change required to accommodate all autistics.
Comment: Starting point for adjudicating the disagreements about how to address the justice claims by disability (and disabled) activists more generally. Requires basic knowledge of the disability rights movement in general, and neurodiversity movement in particular.
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Mackenzie, Catriona, Jackie Leach Scully. Moral imagination, disability and embodiment
2007, Journal of Applied Philosophy 24(4), pp. 335-351

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Added by: Maria Jimena Clavel Vazquez
Abstract:
In this paper we question the basis on which judgements are made about the ‘quality’ of the lives of people whose embodied experience is anomalous, specifically in cases of impairments. In moral and political philosophy it is often assumed that, suitably informed, we can overcome epistemic gaps through the exercise of moral imagination: ‘putting ourselves in the place of others’, we can share their points of view. Drawing on phenomenology and theories of embodied cognition, and on empirical studies, we suggest that there are barriers to imagining oneself differently situated, or imagining being another person, arising in part from the way imagination is constrained by embodied experience. We argue that the role of imagination in moral engagement with others is to expand the scope of our sympathies rather than to enable us to put ourselves in the other's place. We argue for explicit acknowledgement that our assessments of others’ QOL are likely to be shaped by the specifics of our own embodiment, and by the assumptions we make as a consequence about what is necessary for a good quality of life.
Comment: available in this Blueprint
Muller-Kosmarov, Clarissa, Chapman, Robert. Neurodiversity and Philosophy
2026, In Bolt, D. (ed.) Oxford Research Encyclopedia of Disability Studies. New York

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Added by: Clotilde Torregrossa, Contributed by: Clarissa Muller-Kosmarov
Abstract:
The relationship between philosophy and neurodiversity has been a focus of study only since the 2010s, but it is emerging as an important subfield of philosophy in interaction with other existing subfields in philosophy. Neurodiversity theory is being developed in a number of core directions, with areas of particular interest including neurodiversity’s relationship to epistemology, phenomenology, and neuroqueer theory, as well as ethical and political philosophy.
Comment: The text is an encyclopedia-style article discussing the philosophy of neurodiversity as well as the relationship between philosophy and neurodiversity. It could be used as a piece of further reading or an introductory text to give students a comprehensive overview of key terms, concepts, and debates, as well as of the current state of research in the area.
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Nussbaum, Martha. Frontiers of Justice: Disability, Nationality, Species Membership
2006, Cambridge, MA: Harvard University Press.

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Added by: Simon Fokt
Publisher’s Note:
Publisher: Theories of social justice are necessarily abstract, reaching beyond the particular and the immediate to the general and the timeless. Yet such theories, addressing the world and its problems, must respond to the real and changing dilemmas of the day. A brilliant work of practical philosophy, Frontiers of Justice is dedicated to this proposition. Taking up three urgent problems of social justice neglected by current theories and thus harder to tackle in practical terms and everyday life, Martha Nussbaum seeks a theory of social justice that can guide us to a richer, more responsive approach to social cooperation. The idea of the social contract--especially as developed in the work of John Rawls--is one of the most powerful approaches to social justice in the Western tradition. But as Nussbaum demonstrates, even Rawls's theory, suggesting a contract for mutual advantage among approximate equals, cannot address questions of social justice posed by unequal parties. How, for instance, can we extend the equal rights of citizenship--education, health care, political rights and liberties--to those with physical and mental disabilities? How can we extend justice and dignified life conditions to all citizens of the world? And how, finally, can we bring our treatment of nonhuman animals into our notions of social justice? Exploring the limitations of the social contract in these three areas, Nussbaum devises an alternative theory based on the idea of capabilities. She helps us to think more clearly about the purposes of political cooperation and the nature of political principles--and to look to a future of greater justice for all.
Comment: This excellent book is valuable in teaching for two main reasons: (1) it extends and expands on the application of the capability approach to non-human animals, the disabled and the global poor; and (2) it offers a valuable critique of Rawls' theory of justice.
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Silvers, Anita. From the Crooked Timber of Humanity, Beautiful Things Can Be Made
2000, in: Brand, Peg Zeglin (ed.), Beauty Matters, Bloomington: Indiana University Press, pp. 197-221.

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Added by: Hans Maes
Summary: Starting from our appreciation of cubist portraits, asks why it to commonplace for us to contemplate distorted depictions of faces with eagerness and enjoyment but to be repelled by real people whose physiognomies resemble the depicted ones. Argues that the aesthetic process that permits our attraction to portrayed human anomalies can be expanded so as to offset the devalued social positioning of real people whose physiognomic features are anomalous. Presenting an anomaly as originality rather than deviance is crucial.
Comment: Useful in discussing portraiture and depiction, beauty, as well as the links between aesthetics and ethics.

Artworks to use with this text:

Pablo Picasso, Maya with a Doll (1938)

Cubist portrait of a child. Silvers interestingly compares this to a photo of a child with osteogenesis imperfecta.

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Silvers, Anita. From the Crooked Timber of Humanity, Beautiful Things Should Be Made!
2011, APA Newsletter, 10(2): 1-5.

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Added by: Hans Maes, Contributed by: Christy Mag Uidhir
Summary: Follow-up essay on her 'From the Crooked Timber of Humanity, Beautiful Things Can Be Made' (note the one-word difference in the title). Adds the idea that medical professionals have at least a mild duty to cultivate aesthetic judgment of individuals with biological differences. Also makes the case that beauty is not the same thing as attractiveness or normalcy.
Comment: Useful in discussing portraiture and depiction, beauty, as well as the links between aesthetics and ethics.

Artworks to use with this text:

Riva Lehrer, Susan Nussbaum (1998)

This portrait of disability activist Nussbaum invokes Picasso's famous portrait of Gertrude Stein (1906). It is discussed in Garland-Thomson.

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Stark, Cynthia A.. How to Include the Severly Disabled in a Contractarian Theory of Justice
2007, Journal of Political Philosophy 15 (2): 127-145.

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Added by: Carl Fox
Content: Modifies and then defends a Rawlsian theory of justice from the charge that it cannot adequately account for the claims of severely disabled individuals who cannot participate fully in schemes of cooperation.
Comment: Best suited as specialised or further reading on disability and Rawlsian theories of justice.
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Stramondo, Joseph A.. Tragic Choices: Disability, Triage, and Equity Amidst a Global Pandemic
2021, The Journal of Philosophy of Disability. 1: 201–210

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Added by: Chris Blake-Turner
Abstract:
In this paper, I make three arguments regarding Crisis Standards of Care developed during the COVID-19 pandemic. First, I argue against the consideration of third person quality of life judgments that deprioritize disabled or chronically ill people on a basis other than their survival, even if protocols use the language of health to justify maintaining the supposedly higher well-being of non-disabled people. Second, while it may be unavoidable that some disabled people are deprioritized by triage protocols that must consider the likelihood that someone will survive intensive treatment, Crisis Standards of Care should not consider the amount or duration of treatment someone may need to survive. Finally, I argue that, rather than parsing who should be denied treatment to maximize lives saved, professional bioethicists should have put our energy into reducing the need for such choices at all by resisting the systemic injustices that drive the need for triage.
Comment (from this Blueprint): Stramondo critiques triage protocols that were put into place, or at least proposed, during the COVID-19 pandemic. Stramondo argues that protocols that prioritize quality of life involve ableist commitments. While chance-of-survival protocols might do better here, he argues that they are also vulnerable to creeping ableism. Stramondo’s paper is valuable not only for its perspective on triage protocols, but also for highlighting some crucial theoretical contributions by philosophers of disability and by bioethicists. Stramondo also argues not to cede too much ground to fatalism in thinking about triage protocols; bioethicists should also, and perhaps primarily, resist the framing of triage as inevitable, rather than a product of various privileged interests.
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Struyf, Joke. Please Leave the Emergency Lane in an Orderly Fashion: Ableism in Western Normative Motherhood
2023, Tijdschrift voor Genderstudies, 26(3/4): 217-234
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Added by: Clotilde Torregrossa, Contributed by: Joke Struyf
Abstract:

In this article, I propose the hypothesis that in contemporary western normative motherhood, pregnancy and (early) motherhood are often perceived as a temporary fit of bewilderment, both physically, psychologically and socially. I introduce the metaphor of the emergency lane to express this state of exception. Mothers are granted temporary relief from certain expectations. However, the need to get back in shape and back to work – the need to leave the emergency lane – quickly, preferably unharmed, reveals the assumption that mothers in that early period are not fully regarded as people. Drawing on insights from maternal and critical disability scholars I argue that these norms are deeply ableist and affect all mothers. Moreover, I suggest that postponed motherhood might be linked to the fear of this emergency lane, and I use the decline theory, a concept from ageing studies, to make this argument.

Comment: This text links Crip theory with the critical study of motherhood/mothering. It can spark further discussion on parallels between these. It also makes explicit the ableism (understood broadly based on Wolbring's and Lewis' definitions) in normative motherhood, understanding ableism in a broad way. In this way, it can fuel further discussion on ableism as the underlying ‘ism’ that structures all other prejudices/'isms'.
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Taylor, Sunaura. Beasts of Burden: Animal and Disability Liberation
2017, The New Press

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Added by: Chris Blake-Turner
Publisher’s Note:
How much of what we understand of ourselves as “human” depends on our physical and mental abilities—how we move (or cannot move) in and interact with the world? And how much of our definition of “human” depends on its difference from “animal”? Drawing on her own experiences as a disabled person, a disability activist, and an animal advocate, author Sunaura Taylor persuades us to think deeply, and sometimes uncomfortably, about what divides the human from the animal, the disabled from the nondisabled—and what it might mean to break down those divisions, to claim the animal and the vulnerable in ourselves, in a process she calls “cripping animal ethics.” Beasts of Burden suggests that issues of disability and animal justice—which have heretofore primarily been presented in opposition—are in fact deeply entangled. Fusing philosophy, memoir, science, and the radical truths these disciplines can bring—whether about factory farming, disability oppression, or our assumptions of human superiority over animals—Taylor draws attention to new worlds of experience and empathy that can open up important avenues of solidarity across species and ability. Beasts of Burden is a wonderfully engaging and elegantly written work, both philosophical and personal, by a brilliant new voice.
Comment (from this Blueprint): In this excerpt from her book, Beasts of Burden, Taylor resists the way that animals and intellectual disabled people are often framed in terms of one another. She argues that this does a disservice to both groups. Animals are not voiceless, as they are often constructed. And their comparison to disabled people in the (in)famous argument from marginal cases should not be accepted. Perhaps most importantly, the argument opens for discussion the worth of disabled people’s lives. But this is not something that should be open for discussion, especially given the marginalization of disabled people.
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