Chong-Ming Lim. Accommodating Autistics and Treating Autism: Can We Have Both?
2015, Bioethics 29(8), 1-9
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Added by: Björn Freter
Abstract: One of the central claims of the neurodiversity movement is that society should accommodate the needs of autistics, rather than try to treat autism. People have variously tried to reject this accommodation thesis as applicable to all autistics. One instance is Pier Jaarsma and Stellan Welin, who argue that the thesis should apply to some but not all autistics. They do so via separating autistics into high‐ and low‐functioning, on the basis of IQ and social effectiveness or functionings. I reject their grounds for separating autistics. IQ is an irrelevant basis for separating autistics. Charitably rendering it as referring to more general capacities still leaves us mistaken about the roles they play in supporting the accommodation thesis. The appeal to social effectiveness or functionings relies on standards that are inapplicable to autistics, and which risks being deaf to the point of their claims. I then consider if their remaining argument concerning autistic culture may succeed independently of the line they draw. I argue that construing autistics' claims as beginning from culture mistakes their status, and may even detract from their aims. Via my discussion of Jaarsma and Welin, I hope to point to why the more general strategy of separating autistics, in response to the accommodation thesis, does not fully succeed. Finally, I sketch some directions for future discussions, arguing that we should instead shift our attention to consider another set of questions concerning the costs and extent of change required to accommodate all autistics.Chong-Ming Lim, Michael C. Dunn, Jacqueline J. Chin. Clarifying the best interests standard: the elaborative and enumerative strategies in public policy-making2016, Journal of Medical Ethics 42(8), 1-8-
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Added by: Björn Freter
Abstract: One recurring criticism of the best interests standard concerns its vagueness, and thus the inadequate guidance it offers to care providers. The lack of an agreed definition of ‘best interests’, together with the fact that several suggested considerations adopted in legislation or professional guidelines for doctors do not obviously apply across different groups of persons, result in decisions being made in murky waters. In response, bioethicists have attempted to specify the best interests standard, to reduce the indeterminacy surrounding medical decisions. In this paper, we discuss the bioethicists’ response in relation to the state's possible role in clarifying the best interests standard. We identify and characterise two clarificatory strategies employed by bioethicists —elaborative and enumerative—and argue that the state should adopt the latter. Beyond the practical difficulties of the former strategy, a state adoption of it would inevitably be prejudicial in a pluralistic society. Given the gravity of best interests decisions, and the delicate task of respecting citizens with different understandings of best interests, only the enumerative strategy is viable. We argue that this does not commit the state to silence in providing guidance to and supporting healthcare providers, nor does it facilitate the abuse of the vulnerable. Finally, we address two methodological worries about adopting this approach at the state level. The adoption of the enumerative strategy is not defeatist in attitude, nor does it eventually collapse into (a form of) the elaborative strategy.Comment: Requires basic knowledge of the 'best interests standard', and very basic knowledge of the central claims of political liberalism. Best discussed alongside other standards of decision making for those who cannot decide for themselves.
Cobb-Greetham, Amanda. Understanding Tribal Sovereignty: Definitions, Conceptualizations, and Interpretations2005, American Studies, 46(3), 115–132.-
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Added by: Sonja Dobroski and Quentin PharrAbstract:
Forty years have passed since the Midcontinent American Studies Journal published its landmark special issue, "The Indian Today." Since that publication, the landscape of Indian country has changed dramatically. This change has come primarily from an amazing cultural resurgence among Native Peoples in the United States — a resurgence that has manifested itself in everything from the Red Power movement to the birth of American Indian studies in the academy; to the renaissance of contemporary Native art, literature, and film; to the creation of tribal colleges, museums, and cultural centers; to the unprecedented rise in economic development; to notable gains in power in political and legal arenas.Comment:
available in this Blueprint
Cokley, Kevin, Awad, Germine H.. In Defense of Quantitative Methods: Using the “Master’s Tools” to Promote Social Justice2013, Journal for Social Action in Counseling and Psychology 5 (2)-
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Added by: Tomasz Zyglewicz, Shannon Brick, Michael GreerAbstract:
Empiricism in the form of quantitative methods has sometimes been used by researchers to thwart human welfare and social justice. Some of the ugliest moments in the history of psychology were a result of researchers using quantitative methods to legitimize and codify the prejudices of the day. This has resulted in the view that quantitative methods are antithetical to the pursuit of social justice for oppressed and marginalized groups. While the ambivalence toward quantitative methods by some is understandable given their misuse by some researchers, we argue that quantitative methods are not inherently oppressive. Quantitative methods can be liberating if used by multiculturally competent researchers and scholar-activists committed to social justice. Examples of best practices in social justice oriented quantitative research are reviewed.Comment (from this Blueprint): Cokley and Awad are both psychologists, whose work seeks to redress the wrongs of past injustices against marginalized groups, and who both use quantitative methods to do so. In this article, they sketch some of the historical reasons why members of marginalized groups are sometimes rightly suspicious of the use of quantative techniques. However, they both argue that quantitative methods are not necessarily oppressive, but can be put to good use provided their practioners are committed to social justice. They offer some examples, from their own work, of how this sort of quantitative work can help to further the cause of social justice.
Coleman, Elizabeth Burns. Cultural Property and Collective Identity2006, In Returning (to) Communities: Theory, Culture and Political Practice of the Communal, edited by Stefan Herbrechter and Michael Higgins: Brill.-
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Added by: Erich Hatala Matthes
Summary: This short paper examines the relationship between cultural property and collective identity through a close analysis of a paper by Richard Handler that questions such a relationship. In particular, Handler raises a version of common worries about the lack of cultural group continuity over time: because cultures are constantly changing, this fact is thought to undermine claims about the relationship between cultural identity and cultural property, as well as subsequent repatriation requests. Coleman pushes back against this objection by questioning what kind of identity or sameness is actually required for cultural continuity over time.Comment: Though focused on a reading that is not included in this curriculum, this text pairs well with, for instance, the Appiah, Thompson, or Young readings in this module, or any other article that raises questions about cultural continuity over time.
Coleman, Elizabeth Burns. Repatriation and the Concept of Inalienable Possession2010, In The Long Way Home, edited by Paul Turnbull and Michael Pickering: Berghan Books.-
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Added by: Erich Hatala Matthes
Summary: The concept of inalienable possession often figures centrally in debates about repatriation of cultural artifacts (which are also often artworks). The right of alienability (or the right to transfer title to property) is one of the core rights in Western property theory. If property is inalienable, this means that title to it cannot rightly be transferred. In this paper, Coleman analyzes the concept of inalienable possession, and argues that laws (such as the Native American Graves Protection and Repatriation Act (NAGPRA)) can foist a conception of inalienable possession on indigenous peoples that can be inaccurate to past and changing cultural norms. She uses this point to offer a distinction between property and ownership. This opens up conceptual space for a link between objects and identity through ownership that might nevertheless allow for the alienability of such property.Comment: This paper is best for a course unit that is making room for in-depth discussion of the property dimensions of cultural property. It would pair well with Janna Thompson's "Art, Property Rights, and the Interests of Humanity," or James O. Young's "Cultures and Cultural Property." It can be also used together with or in lieu of Sarah Harding's much longer and more detailed paper "Justifying Repatriation of Native American Cultural Property."
Coleman, Elizabeth Burns, Rosemary J. Coombe, Fiona MacArailt. A Broken Record: Subjecting ‘Music’ to Cultural Rights2012, In The Ethics of Cultural Appropriation, edited by James O. Young and Conrad G. Brunk: Blackwell Publishing.-
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Added by: Erich Hatala Matthes
Summary: This article presents multiple arguments for the "repatriation" of indigenous music, and the assertion of indigenous cultural rights, while troubling the imposition of legalistic frameworks of Western intellectual property. It situates the harms of appropriation in the perpetuation of unjust systems and misrepresentation, and demonstrates how careful attention to specific cultural practices can play an essential role in sorting out sometimes overly abstract debates about repatriation and appropriation.Comment: This is a long and difficult text, but it does an excellent job of marrying careful attention to cases with philosophical context and reflection. It is a good choice for more advanced classes, particularly ones that might be focusing on music.
Coleman, Elizabeth Burns. Aboriginal Painting: Identity and Authenticity2001, Journal of Aesthetics and Art Criticism 59(4): 385–402.-
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Added by: Erich Hatala Matthes
Summary: Coleman argues for an ontological understanding of Australian Aboriginal artworks (namely, that they function as insignia that require authoritative endorsement) that can resolve disputes about the authenticity of controversial cases of Aboriginal art. More broadly, her article illuminates the ways in which viewing art as part of a cultural heritage can affect how we understand its authenticity.Comment: This is a longer text that intersects with a number of other topics, including appropriation, art ontology, and the art-status of non-Western artworks. It could be used in the context of course units exploring any of those themes, or to raise them in the context of a unit on authenticity.
Collins, Patricia Hill. A Black women’s standpoint1995, In Beverly Guy-Sheftal (ed.), Words of Fire: An Anthology of African American Feminist Thought. The New Press.-
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Added by: Clotilde Torregrossa, Contributed by: Corbin Covington
Publisher's Note: The first major anthology to trace the development, from the early 1800s to the present, of black feminist thought in the United States, Words of Fire is Beverly Guy-Sheftall's comprehensive collection of writings, in the feminist tradition, of more than sixty African American women. From the pioneering work of abolitionist Maria Miller Stewart and anti-lynching crusader Ida Wells-Barnett to the writings of contemporary feminist critics Michele Wallace and bell hooks, black women have been writing about the multiple jeopardies--racism, sexism, and classicm--that have made it imperative for them to forge a brand of feminism uniquely their own.Comment:
Collins, Patricia Hill. Black Feminist Epistemology2007, In Craig J. Calhoun (ed.), Contemporary Sociological Theory. Blackwell. pp. 327.-
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Added by: Clotilde Torregrossa, Contributed by: Corbin Covington
Abstract: US black feminist thought reflects the interests and standpoint of its creators. Indeed, White men have control over knowledge. And, Black women's ideas have been controlled by White men interpretation of the world. This means that Black feminist thought can best be viewed as subjugated knowledge.Comment:
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Comment: Starting point for adjudicating the disagreements about how to address the justice claims by disability (and disabled) activists more generally. Requires basic knowledge of the disability rights movement in general, and neurodiversity movement in particular.